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Acknowledgements

The End-of-Life Essentials Project is funded by the Australian Government Department of Health.

End-of-Life Essentials National Advisory Group

The National Advisory Group acts as a reservoir of knowledge, skills and networks for the EOLE project. It provides a sounding body and an exchange point for promotion and linkage into constituencies.

The functions of the NAG are to:

  1. Provide strategic guidance and direction.
  2. Review quality and standards processes for the inclusion of material in the project.
  3. Contribute to content and function of education modules.
  4. Advise on health service, system and community issues relating to the EOLE project.
  5. Ensure that the needs of possible users of the Education Modules on End of Life Care are recognised and addressed within the education resources.
  6. Maximise collaboration with the project team and the acute hospital clinician community.
  7. Advise on the marketing and branding of the EOLE project.
  8. Review and endorse the Project’s structure and content.

We would like to acknowledge and thank the following people for their contribution:

  • Ms Angie Dalli
  • Ms Claudia Virdun
  • Dr James Smyth
  • Professor Imogen Mitchell
  • Ms Jeanette Lacey
  • Ms Tegan Brazier
  • Ms Michelle Mason
  • Associate Professor Kim Devery
  • Ms Deb Rawlings

Collaborative Partnerships

End-of-Life Essentials has had the opportunity to collaborate with The University of Notre Dame Australia to develop the ‘States of Mind’ education module series. This series includes three modules exploring patients states of mind at the end of life:

  • Module 1: States of Mind at the End of Life, focusses on describing aspects of psychosocial and existential wellbeing in end of life care.
  • Module 2: Understanding Patient States of Mind at the End of Life, focusses on screening for psycho-existential symptoms.
  • Module 3: Clinical Management of Anxiety, Depression and More, focusses on the clinical management of anxiety, demoralisation, depression, and existential distress.

In particular, we would like to extend our appreciation to Professor David Kissane for providing EOLE with the opportunity to collaborate and support the Routine Clinical Assessment of Psychosocial and Existential Systems in Palliative Care Project.

The Australian Commission on Safety and Quality in Health Care (ACSQHC) has supported EOLE since it commenced in 2015. We continue to collaborate to develop and review education modules based on the Commission’s National Consensus Statement: Essential elements for safe and high-quality end-of-life care.

End-of-Life Essentials has recently engaged with the Australian Council on Health Care Standards (ACHS) to support Australian acute hospitals in meeting hospital accreditation standards. We look forward to continuing this collaboration and supporting hospitals in addressing the Comprehensive Care Standard (5) and aspects of the Recognising and Respond to Acute Deterioration Standard (8).

2021 Peer Reviewers and User Testers

We would like to acknowledge and thank the following individuals for participating in the usability testing of our States of Mind Modules. We greatly appreciate their time and expertise:

  • Ms Tracey Duggan
  • Mr Jonathon Lennon
  • Ms Kate Munro
  • Ms Helene Hipp
  • Ms Jane Appleton
  • Ms Cynthia Masters
  • Ms Chris Davis
  • Ms Bernadette Bowling
  • Ms Liz Wright
  • Ms Kerryn Greive
  • Professor Liz Lobb
  • Ms Gabrielle Prest
  • Ms Jenny Richards
  • Ms Erin Rooney
  • Ms Helen Kendrick
  • Ms Bronwen Hewitt

Commercial partners

We would like to acknowledge the work of our commercial partners in supporting the End-of-Life Essentials Project.

National Consultative Group

The National Consultative Group acts as a reservoir of knowledge, skills and networks for the project. It acts as a sounding board and an exchange point for promotion and linkage into broader community. Its functions are:

  • To review quality and standards processes for the inclusion of material in the project;
  • To contribute to content and function;
  • To advise on service, system and community issues relating to project and their potential effects on the project;
  • To ensure that the needs of possible users of the project are recognised and included;
  • To maximise collaboration with communities; and
  • To advise on the marketing and branding of the project.

We would like to acknowledge and thank the following people for their contribution:

  • Ms Sarah Baggio
  • Ms Melissa Heywood
  • Dr Marianne Phillips
  • Dr Martha Mherekumombe
  • Ms Julie Duffield
  • Ms Nora O'Loughlin
  • Ms Lee-anne Pederson
  • Dr Sharon Ryan
  • Dr Katherine Flynn
  • Ms Alison Hession
  • Ms Maureen O’Brien
  • Dr Christine Drummond
  • Ms Catherine Munro
  • Dr Peter ‘Kevin’ O’Shaughnessy
  • Dr Tracey Giles
  • Ms Naomi Poole
  • Dr Deidre Morgan
  • Ms Deborah Rawlings

These organisations assisted with development of End-of-Life Essentials:

Palliative Care Australia enabled the development of the End-of-Life Care in Paediatrics with funding provided by the Australian Department of Health.

Paediatric Palliative Care Australia and New Zealand (PaPCANZ)

Paediatric Palliative Care Australia and New Zealand (PaPCANZ) provided National Consultancy Group membership for the End of life Essentials module End-of-Life Care in Paediatrics.

Quality of Care Collaborative Australia collaborated in the development of End-of-Life Care in Paediatrics.

Peer Reviewers and User Testers

  • Dr Kirsty Povey
  • Jeanette Lacey
  • Helen Kendrick
  • Janine Stockley
  • Angie Wilson
  • Dr Yu-Ling Chen
  • Brett Herrmann
  • Heather Dunnachie
  • Jayne Hartwig
  • Barbara Harvie
  • Christine Davis
  • Daniela Vasquez
  • Dr Helen Psihogios
  • Dr Derek Louey
  • Dr Marta Malkiewicz
  • Dr Khanh Nguyen

Commercial partners

We would like to acknowledge the work of our commercial partners in developing the End-of-Life Essentials Project.

Advisory Group

The Advisory Group acts as a reservoir of knowledge, skills and networks for the project. It acts as a sounding board and an exchange point for promotion and linkage into broader community. Its functions are:

  • To review quality and standards processes for the inclusion of material in the project;
  • To contribute to content and function;
  • To advise on service, system and community issues relating to project and their potential effects on the project;
  • To ensure that the needs of possible users of the project are recognised and included;
  • To maximise collaboration with communities; and 
  • To advise on the marketing and branding of the project.

Advisory Group Members

  • Professor Imogen Mitchell is Deputy Dean at the Australian National University Medical School and an Intensive Care Physician in Canberra. She is a  former Harkness Fellow, Johns Hopkins School of Public Health.
  • Professor Katherine Clark is Medical Director of Palliative Care, Calvary Mater Newcastle, Conjoint Professor, School of Medicine & Public Health, University of Newcastle.
  • Dr Alison Russell is Director of the Centre for Education and Training at the Women's and Children's Health Network in South Australia. 
  • Dr Chris Drummond is Senior Palliative Medicine Consultant, Lyell McEwin Hospital and Central Adelaide Palliative Care.
  • Ms Kate Munro is Hunter New England Health’s End-of-Life Care Coordinator.
  • Ms Sue Hanson is the National Director of Clinical Services, Little Company of Mary Health Care (Calvary). She led the development and national implementation of quality standards assessment programs in palliative care and held an inaugural Area Director of Clinical Governance position in NSW.
  • Ms Jennifer Hill is the Senior Project Officer for the recognising and responding to clinical Deterioration Program at the Australian Commission on Safety and Quality in Health Care (ACQSHC). She has also been involved in developing the Consensus Statement (2015-2016).
  • Ms Naomi Poole is the Program Manager for the Partnering with Consumers program at ACQSHC (2016-).
  • Dr Nicola Dunbar is Director of Strategy & Development at ACQSHC. She has responsibility for the Commission’s work regarding partnering with consumers and the deteriorating patient.
  • Ms Kim Devery is Head of the Discipline of Palliative and Supportive Services, Flinders University and the Project Lead.
  • Associate Professor Jennifer Tieman is CareSearch Director and Associate Professor in the Discipline of Palliative and Supportive Services, Flinders University.

Peer Reviewers

Many members of the clinical community have donated their time to the review of content, resources and products associated with this project. We would like to acknowledge and thank the following people for their contribution

  • Ms Tarah Baker
  • Associate Professor Josephine Clayton
  • Ms Valerie Colgan
  • Dr Aileen Collier
  • Professor David Currow
  • Dr Christine Drummond
  • Dr Sadie Dunn
  • Ms Bronwen Hewitt
  • Professor Ken Hillman
  • Ms Jeanette Lacey
  • Dr Juli Moran
  • Dr Deidre Morgan
  • Ms Deborah Rawlings
  • Ms Raelene Rees
  • Dr Ravi Ruberu
  • Professor Lambert Schuwirth
  • Ms Karen Sherwell
  • Dr Nicholas Waldron

Commercial partners

We would like to acknowledge the work of our commercial partners in developing the End-of-Life Essentials Project

  • Flinders Creations
  • MADhouse Marketing and Design
  • Morton Blacketer Pty Ltd
  • Reward Design Pty Ltd

Doctors, nurses and allied health professionals

We acknowledge the following doctors, nurses and allied health professionals around Australia who participated in usability testing of the modules in the development phase

  • Dr Kerrie Aust
  • Ms Estelle Baker
  • Ms Carol Barbeler
  • Ms Sue Berry
  • Dr Kaye Basire
  • Dr Pretoria Bilinski
  • Dr Sandra Bradley
  • Dr Brandon Burke
  • Dr Aileen Collier
  • Ms Lisa Connell
  • Ms Karen Conte
  • Ms Xiaoling Costain
  • Dr Geoff Cutfield
  • Ms Monica Dowling
  • Ms Angela Franco
  • Ms Melanie Hahne
  • Ms Jennellda Harlow
  • Ms Debbie Hynds
  • Ms Helen Kendrick
  • Ms Mikaela Lawrence
  • Ms Lisa Mahon
  • Ms Coral Marks
  • Ms Meg McNaught
  • Mr Ian Millard
  • Ms Tameeka Mulquiney
  • Ms Stacey Palfreyman
  • Ms Claire Perry
  • Ms Deborah Rawlings
  • Ms Sandra Rawson
  • Ms Rose Sexton
  • Ms Lisa Shaw
  • Ms Jo-Anne Slee
  • Ms Janet Taylor
  • Ms Janet Vermeeren
  • Ms Kasey Walsh

Video production team

We acknowledge the video production team from Flinders Creations who produced the videos for this project and the actors who played the roles in the scenarios

  • Dr Matthew Hawkins
  • Mr Jordan Agutter
  • Mr Manny Ashman
  • Mr Benno Thiel
  • Ms Emily Branford
  • Ms Lizzie Hay
  • Mr Lochy Maybury
  • Ms Jacqui Phillips
  • Mr Stephen Sheehan
  • Mr Jermaine Hampton
  • Ms Maylin Superio
  • Mr Mit Lade

End-of-Life Essentials Project Team

  • Ms Kim Devery
  • Ms Caroline Litster
  • Ms Natasha Tsoupas
  • Ms Helen Preece
  • Ms Jane Durbridge
  • Associate Professor Jennifer Tieman
  • Ms Mikaela Lawrence

The CareSearch project is providing the infrastructure for the End-of-Life Essentials Project e-learning and website. They are also responsible for the development of the implementation toolkit.